FSH-MD Support Group UK FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy FSHD and their families.

25 Questions about FSH. What is scapular fixation? Scapular fixation Leannes story. Scapular fixation James story. Scapular fixation Ians story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy FSH-MD. We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr.

OVERVIEW

The domain fsh-group.org presently has a traffic ranking of zero (the smaller the better). We have analyzed zero pages within the website fsh-group.org and found ten websites interfacing with fsh-group.org. We were able to discover three contacts and addresses for fsh-group.org to help you communicate with them. We were able to discover one social communication accounts acquired by this website. The domain fsh-group.org has been online for one thousand two hundred and sixty-six weeks, five days, nine hours, and thirty-nine minutes.
Links to this site
10
Contacts
3
Addresses
3
Social Links
1
Online Since
Nov 2000

FSH-GROUP.ORG TRAFFIC

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FSH-GROUP.ORG HISTORY

The domain fsh-group.org was first recorded on November 02, 2000. It is now one thousand two hundred and sixty-six weeks, five days, nine hours, and thirty-nine minutes old.
REGISTERED
November
2000

SITE LENGTH OF LIFE

24
YEARS
3
MONTHS
5
DAYS

LINKS TO WEBSITE

Facioscapulohumeral Muscular Dystrophy- UK Patient Registry for FSHD

To help advance the research and development of treatment, therapies and care for all those diagnosed with FSHD. More information for particpants and their families. More infomormation for professional users. There are currently 885 patients registered in this database. The registry is funded by Muscular Dystrophy UK. With support from the John Walton Muscular Dystrophy Research Centre. And MRC Centre for Neuromuscular Disease.

Karens FSH Journey

Monday, 21 April 2008. An everyday account of living with Fasio Scapulo Humeral Muscular Dystrophy. the ups and the downs the frustrations and the positives. I was born with a defective gene passed on from my Dad.

SITraN - The University of Sheffield

SHEFFIELD MND CARE AND RESEARCH CENTRE. Welcome to the Sheffield Motor Neurone Disorders Care and Research Centre. The care centre co-ordinator is a single point of contact for people with MND and their families. It has a dedicated clinic with a multidisciplinary team who have expertise in the management of MND. The team works closely with the doctors, nurses and other community teams. Dr examining patient in clinic. Are you a first time visitor? How to find the clinic? How to get to the clinic.

WHAT DOES FSH-GROUP.ORG LOOK LIKE?

Desktop Screenshot of fsh-group.org Mobile Screenshot of fsh-group.org Tablet Screenshot of fsh-group.org

CONTACTS

FSH-MD Support Group

FSH-MD Support Group

8 Caldecote Gardens

GB

Account Role

Account Role

The Park Business Centre

GB

Host Europe Internet Ltd

Host Europe Helpdesk

Portland Street

Nottingham, Nottinghamshire, NG92LP

GB

FSH-GROUP.ORG SERVER

We diagnosed that a lone page on fsh-group.org took one thousand seven hundred and sixty-six milliseconds to download. Our crawlers could not find a SSL certificate, so in conclusion our parsers consider this site not secure.
Load time
1.766 sec
SSL
NOT SECURE
IP
79.170.40.54

NAME SERVERS

ns.mainnameserver.com
ns2.mainnameserver.com

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SERVER SOFTWARE

We observed that this domain is operating the Apache/2.4.29 (Unix) server.

HTML TITLE

FSH-MD Support Group UK FSH-MD Support Group UK is a National, voluntary help group dedicated to improving the lives of people with facioscapulohumeral muscular dystrophy FSHD and their families.

DESCRIPTION

25 Questions about FSH. What is scapular fixation? Scapular fixation Leannes story. Scapular fixation James story. Scapular fixation Ians story. South West Neuromuscular News. Action on FSH Appeal Muscular Dystrophy Campaign. As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy FSH-MD. We help provide support to those with FSH-MD as well as their carers, family and friends. There are also pr.

PARSED CONTENT

The domain states the following, "What is scapular fixation? Scapular fixation Leannes story." I observed that the web page said " Action on FSH Appeal Muscular Dystrophy Campaign." They also stated " As a support group partner of the Muscular Dystrophy UK, we are here to help improve the quality of life for those who have Facioscapulohumeral Muscular Dystrophy FSH-MD. We help provide support to those with FSH-MD as well as their carers, family and friends."

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